FETAL ALCOHOL SPECTRUM DISORDERS (FASD) IN THE CONTEXT OF QUALITY OF LIFE OF THE CHILD AND HIS/HER CAREGIVERS

Petra Mitašíková; Barbora Vodičková

doi:10.18769/ijasos.1070749

EN

FETAL ALCOHOL SPECTRUM DISORDERS (FASD) IN THE CONTEXT OF QUALITY OF LIFE OF THE CHILD AND HIS/HER CAREGIVERS

Abstract

The present article defines fetal alcohol spectrum disorders (FASD), describes the aetiology, prevalence, manifestations, and consequences of FASD impacting the quality of life of individuals and their families, diagnostic, intervention approaches, and emphasises prevention. Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term covering a group of congenital neurodevelopmental defects and brain damage resulting from prenatal alcohol exposure (PAE). It is a continuum of bio-psycho-social impacts associated with PAE. There are multiple approaches to diagnosing and treating disorders associated with prenatal alcohol exposure during pregnancy worldwide. All persons with FASD have lifelong cognitive, social, and behavioural difficulties. Individuals with FASD present multidimensional challenges in childhood for parents and caregivers, with an impact on other family members. For this reason, families also need support from society. Evidence-based interventions need to be implemented to support individuals with FASD and their families. Addressing this issue requires a multidisciplinary professional approach. FASD is a costly issue for society, so it is reasonable to invest in significant prevention. Our qualitative research mapped the positive and negative influences on the quality of life of child with FASD and his/her caregivers/parents. We found that the negative aspects affecting the quality of life of the child with FASD and his/her caregivers/parents include: Significant manifestations of behavioural problems of the child with FASD in the school and home environment; Early traumatisation and re-traumatisation of the child with FASD; Disrupted relational bond between the caregiver/parent and the child with FASD and Negative impact of parenting a child with FASD on the mental and physical health of the caregiver/parent. We identified the following positive resources supporting the quality of life of the child with FASD and his/her caregivers/parents: Professional support as one aspect of enhancing the quality of life of the child with FASD and his/her caregivers/parents; Compensating for the learning difficulties of the child with FASD in the home environment; Consciously establishing a secure relational bond between the caregiver/parent and the child with FASD; Alternative teaching approaches to the child with FASD in school as a positive influencing factor. The topic of the quality of life of a child with FASD and his/her caregivers/parents is not sufficiently explored in the Slovak and international context. It is about the interconnected links between the child's situation with FASD himself/herself and the impact on his/her whole ecosystem (home environment, parents, siblings, school and broader community). This study presents pilot data on the quality of life of children diagnosed with FASD and their caregivers/parents in Slovakia. The research was supported by a grant Kega No. 002UK-4/2020 Supporting the child with sensory processing disorder through a multisensory environment.

Keywords

Supporting Institution

Comenius University

Project Number

The research was supported by a grant Kega No. 002UK-4/2020 Supporting the child with sensory processing disorder through a multisensory environment.

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Details

Primary Language

English

Subjects

-

Journal Section

Research Article

Authors

Petra Mitašíková ^*
Slovakia

Barbora Vodičková
0000-0002-2193-0405
Slovakia

Publication Date

May 7, 2022

Submission Date

February 9, 2022

Acceptance Date

March 6, 2022

Published in Issue

Year 1970 Volume: 8 Number: 22

DOI

https://doi.org/10.18769/ijasos.1070749

IZ

https://izlik.org/JA49SW78SA

Cite

RIS / Bibtex

EndNote

Mitašíková P, Vodičková B (May 1, 2022) FETAL ALCOHOL SPECTRUM DISORDERS (FASD) IN THE CONTEXT OF QUALITY OF LIFE OF THE CHILD AND HIS/HER CAREGIVERS. IJASOS- International E-journal of Advances in Social Sciences 8 22 17–29.

Cited By

Craniofacial and other typical deficits in children with Foetal Alcohol Syndrome - FAS in the context of Foetal Alcohol Spectrum Disorders

Listy klinické logopedie

https://doi.org/10.36833/lkl.2023.012

Öz

FETAL ALCOHOL SPECTRUM DISORDERS (FASD) IN THE CONTEXT OF QUALITY OF LIFE OF THE CHILD AND HIS/HER CAREGIVERS

Abstract

Keywords

Supporting Institution

Project Number

References

Details

Primary Language

Subjects

Journal Section

Authors

Publication Date

Submission Date

Acceptance Date

Published in Issue

DOI

IZ

Cite

Cited By

Craniofacial and other typical deficits in children with Foetal Alcohol Syndrome - FAS in the context of Foetal Alcohol Spectrum Disorders